Saturday, January 29, 2011

Life Is NOT Disposable

Asking me if I would knowingly have another child who has Down syndrome is like a double edged sword. I have a daughter who has down syndrome and I wouldn't change her having Ds because that is a part of her and I love her. I would never and could ever have an abortion. I know myself and I know I would never forgive myself. Plus, that is a choice that I believe is truly, not mine. Maybe if the question was asked differently, then I could answer it more appropriately.

I am hoping that my writing abilities are at the very least semi comprehensible, that way I am able to write this in an understanding way...

Justin and I have a possibility that together we may always create a child who has Ds. We are not certain if it is a fact yet and are in the process of having genetic testing done to find the answers we need. Due to a recent flaw in my method of birth control we have been forced to make a decision and unfortunately, we cant make a educated choice with out knowing if Justin is a carrying parent for the Trisomy21 gene.

I tried to explain to my OBGYN when I was in her office on Friday about Translocation Trisomy21 (which is the type that little V has). Dr. P. didn't get it at first. Her suggestion was this...,

Dr. P. "You know what you could do..?" She said as she was looking at Vada who was sitting ever so sweetly in her car seat. Her big almond eyes staring towards the Doctors like she could understand what she was saying. "You could get an amnio and if the fetus had Trisomy21 then you could just abort until you have one that doesn't have it." I instantly felt my face warm and I wanted to get up and leave. Is it wrong for me to want a good doctor? One that believes in God. She wouldn't have recite scripture to me, in fact that might creep me out. All I want is one that believes life is at conception and is created by God and has a purpose. Am I naive? I liked this Doctor. I haven't had much time with her, but up until this point she did her job for me just fine. Now, though, I don't know if I can go back, but I don't really want to go looking for yet another new doctor.

I took a deep breath (something I am getting really good at doing), and then I explained that the 1 in 4 chance was Justin's chance on being a carrying parent and not an actual ratio for babies that we could "produce" who have Ds. Then, I did it. I added in what I truly felt and while I did it nicely and held my composure, I didn't sugar coat it. I couldn't, Vada was right there and she may not have understood what it was that I was saying, but I was saying it for her. I told the doctor that I knew Vada had Ds before she was born and that the knowledge didn't matter. I love her no matter what. I told the her that for me and for my personal believes, (to me), abortion was murder and something I couldn't live with. After calmly stating my case she shook her head and said "Okay, then you wouldn't really want to do that then." She accepted what I said and respected it to some degree, there really wasn't much of a response other than that.

I'm wondering what I should do. I'm feeling a trend with doctors lately and I am wondering if something is wrong with me. I complain or have complained about doctors a lot since the beginning of my pregnancy. Are my standards too high? Is there no such thing as a doctor with real morals and christian values anymore? Am I wrong for wanting those things? Should I find a new doctor? Or do I just agree to disagree? After all, isn't it wrong to not accept her for her differences? She did hear me, acknowledge me and then drop the subject once I told her my believes. Is that good enough? Its something that I am praying about.

Why is life so disposable to people? I don't understand how anyone could throw that option around so easily and actually live with themselves. I'm sorry, I just cant. No, I wont.

What about those poor women and even girls who are offered this option but are never told the other side? Who is going to help them when they are hurting because of their choice? Or worse, what about the ones who get pregnant over and over and use abortion as a means of birth control. It makes me sick. That visit made me sick and has left a fowl taste in my mouth and a longing to never let Vada go. The realization is setting in that there are people in this world who would not have made the same choice that I made in keeping Vada and those who look at Vada now, in her beautiful baby flesh and don't see her as a real person who has a place in this world and who carries an over abundance of value. Its sad.

So, back to the original question..., Would I knowingly have another child who has Ds? Yes and no. If Justin is a carrying parent then we have decided that he will probably have a hysterectomy since it is a less invasive procedure for him. That decision is not final but it will be something that we will look further into if needed. It's hard to give a definite answer. I love children and I would someday like to have a son or another daughter, but i am not in a place to really begin planning for another addition in our family. With that being said, I would undoubtedly adopt a child who has Ds or even another disability and I would love him or her as my own if we did decide to not have any more biological children.

1 comment:

Leah S. said...

Seething....seething here! You know, there are A LOT of doctors in this world, and in your community. It is NOT hard to find a doctor who who is supportive of LIFE!! Here is what I would ask your doctor, "I need to have a doctor who is supportive of my pregnancy in EVERY way. That is why I'm coming to you. That is what I am PAYING you to do. If you cannot do that, please tell me know so I can find a different doctor." I would go on to ask how many babies/children/teens/adults with DS she knows. I would remind her that what Vada is experiencing is NOT the norm, and doesn't mean that if you have another child with DS he/she will have the same medical issues. And maybe he/she will! We are not God, and it is not up to us to make those decisions for him.

In the meantime, know that I am praying for you. Just cuz.