Living a Busy Life

Well, the photo shoot for Vada's famous window picture was done on Wednesday. It was paired with the group photo shot of all of the babies (at least the one's who could make it) from our local GiGi's Playhouse. I'm not for sure when Vada's picture is going up (since it was just done a couple of days ago) but i'll let you know as soon as it does-- Im so excited to see it and to see it up!! I'm also thrilled that she was able to be in the group picture, that could quite possibly make its way around the states! Ill save the details for later and let it all be a surprise. I didn't take any pictures to share the experience although I really wanted to but since we were in another photographers personal studio I thought it may have been a rude thing to do. We plan on purchasing some of his prints and when we do I will share those as well!

V is still fighting the same ear infection from a month ago. She has just finished antibiotic number three which I thought it was helping but obviously is not because her nose is still running and it the name kind of nasty as when she began this last Rx. On the night of the photo shoot she had a runny nose and matty eyes and I didnt think that I would be able to bring her but her mess cleared some by the evening, which was when the pictures were scheduled.  Her symptoms are not contagious though and wasn't the night of the shoot--  if they were then I wouldn't have brought her. I don't like when other parents bring their sick and contagious children around mine so I try to never do the same.

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Today I gave V two injections of synergis (for RSV prevention), one in each thigh. Her cardiologist said that she didnt need to have them this year but her ped's said that we should go ahead and do it. Since this is a preventitive medication we decided to go ahead and do them. Since V is so far behind on her vaccines and hasnt been able to get one since September this little extra bit of protection is reassuring to us and is helpful to her. We had a new visiting nurse come today. We used to have Kathy. Now, we have Julie. She is super sweet and I like her a lot! Julie wont be as involved as Kathy was because she is only coming once a month for the winter season. Kathy was here three times a week and in the beginning she was actually here on a daily basis. While I like Kathy and now Julie, I am grateful that this visits are for something very minor.

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This week has been busy! We have all been running around town and next week is looking the same. Next week V and I will take a well known trip to Peoria. She has a check up with her Endocrinologist. Its a long drive and a long wait for a very short visit but its worth it to keep up with her health.

So far this week we have done dance classes, a night time skate party, a first time school project, a fall Jr. High dance, a double photo shoot, back to back dentist appointments, two doctors appointment, physical therapy, canceled speech therapy due to illness, was on the news for two seconds and tonight we have two extra kiddo's in the house Making the kid count totaling five .

Ahhh.. the life of a mom and you know what... I wouldn't trade it, even on the worst of days!

Have a good weekend everyone!

Our Week

The Wilson household has been busy household over the last week and I have been choosing sleep over extra activities that I normally would be doing once the girls were in bed, such as blogging. So, I thought I would give a quick update on our fun but not overly interesting week.

Finally my sister, her son, Vada and I were able to get together again! It has been over seven months! This was not just the highlight of my day or week, this was one of the greatest highlights of my 2011 year, so far! I have missed her and my little nephew so much.


Vada had her first taste of a smoothie. She seemed to like it, but not enough to try it again. I cant seem to catch her interest in any specific food other than breast milk! We are having a speech therapist come in next week to watch her while I attempt to feed her. Afterward, we will figure out what needs to be done, if anything to help Vada with eating and her mouth control.

I have been working on some major "spring cleaning" this week and throughout the last month. I have cleansed our house of so much clutter already and there is more to go soon. I am hoping that with in the next two weeks I will be completely finished including with my scrap room. Then I can catch up on some scrapbooking. I have two years of photos to do and then some!

Justin tore a wall down in the basement for me and he recently finished another end table that he built. This one is for our house, it's made out of cherry and it is beautiful. He wants to start building furniture and selling it. Maybe have his own business sometime in the future. He's great at whatever he does and I know that he would create a wonderful business for himself, if that's what he chooses to do.

Sometime this weekend my elliptical is coming in and I cant wait! I have missed exercising so much but I have also lacked in the motivation area. I'm ready to get back in to a routine!

I was in a fender bender last Sunday at church and I am still unsure who's fault it actually was. I believe that we were both at fault because we were both in reverse. Either way, its hard to tell so Justin and I took the dive and wrote a check for the damage as to not involve our insurance and in the long run save us money. I was the one driving, Justin was at home asleep from working a night shift. I felt horrible waking him up to tell him about it. Luckily, my husband is very understanding.

Vada and I took another trip to Peoria, this time to meet with her Endocrinologist, for her Thyroid.


Awhile back I wrote about her having Hypothyroidism and this was just a follow up appointment. Everything went well, we are just waiting on her lab results. There may be some minor medication adjustments but nothing overly drastic. She measured the same as before, around 25 inches and now weighs 18 pounds- 8 ounces. Her weight is fluctuating due to her loosing the weight that she gained while on ACTH and having Cushings.

The girls and I went to church this Wednesday for a special Ash Wednesday service. We sat in a pew filled with and surrounded by church members and it felt great! Actually, Vada was held by a wonderful lady who not only works with the youth she is also in the Sunday class that I will be rejoining eventually. It was odd not having her in my arms like I normally do, but Kiliegh quickly replaced that void by lying her head in my lap an pleading with her hazel eyes for me to play with her hair.

Two more things that I am excited about are everyday things to most people, but almost a rare delicacy in our family..., were having company over! Yep, this Saturday Were having one of Justin's friends and his family over for lunch. I'm excited and overwhelmed..., its been so long since we've had anyone other than family over. I cant wait for the interaction and the commotion of the extra children. It'll be fun.

Then, this Monday I set up a luncheon with one of my closest friends and her two little one's. Her and I have grown apart somewhat over these last few months, which is to be expected. We weren't allowed to have Vada around others and she has recently had her second child, so she has been very occupied as well. Needless to say, I am excited to catch back up on our friendship and on all of the things that I have missed over the past year or so.

Things are beginning to really balance out. The sun is shinning more and for longer periods of time. The girls are all thriving and for the most part, getting a long. I have been keeping busy and enjoying all of life's little pleasures. My husband has been successful with his carpentry so far and has some small jobs lined up. Its been a good week and I look forward to the days ahead not with fear but with high hopes and on the brighter side of the spectrum.

One-derful

I have learned about a whole new happiness and a whole new pain in being the mother of a child who has intellectual disabilities. Because of my experiences I have grown as a person and I am proud to say that I have lost a lot of who I was in the past. (Before I go any further into this post, I need to say that the pain I am referring to is completely outweighed by the happiness that I experience on a day to day basis. I wouldn't trade this little girl or any of the things that make her who she is for anything!)

Over the last year and a half I have been told of what Vada will do and what she wont. I have been told what her diagnosis means and I have seen what others think of it. I have had many encounters with parents who have children with Down syndrome. Some are positive and hopeful people and some have been lost to the pain that is caused mainly from society and its views. I pray everyday that I wont get lost in that very pain. I thank God that he has blessed me with eyes that sees and feels her smiles and that they shine through others frowns . She is one of the most beautiful people that I have ever been able to see.

I refuse to fall and I refuse to give up. I wont quit dreaming for any of my children especially Vada who has been dealt a more difficult hand. While I will never be a person who lives through my children I will continue to have high hopes and goals for them.

I know in my heart that Vada will grow, play, learn and live like any other child and like any other child she will do it at her own pace and in her own way. She will be amazing because she already is.

She is so strong. She has taught me so much about strength. I am so grateful that God choose me to be her mother. I wouldn't change anything.

I am celebrating more today than just her birthday. I am celebrating life, hers and my new one. When I was given her prenatal diagnosis there was a definite period of grief. It lasted only a moment but has since revisited at different moments. My heart has changed in the most wonderful way and I have her presence to thank for that!

Happy Birthday beautiful baby. You are One-derful!

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