Recovering: A Quick Update

Vada is still kicking butt and taking names but (and it's a small but) there have been a couple of very minor set backs. Her chest XRay this morning showed some fluid in her right lung, her urine output has decreased and she has gained a decent amount of weight. She came in weighing 17lbs-3oz and now weighs 19lbs-8oz. Many things can be the cause of the different issues, varying in different degrees. Over all, we think that it has to do with the anesthesia and the pain medications that were used during and after her surgery. These things tend to shut down or "quiet" the bowls and cause a backup of fluids. She was started on Lasix again and after not seeing any wet diapers she was changed to a stronger diuretic. Since that medication was introduced (earlier this afternoon) we have seen two very full diapers and have heard a lot of gas being passed.

Another concern is her oxygen intake. Vada has always sat in the low ninety's. Always. However, she is dipping in the high eighties, especially when she is sleeping or nursing. So, she was placed back onto oxygen. She is on the lowest amount that they can give so the concern is very minimal. Right now, she is asleep, her little nose piece is out of her nose and pointing towards her eyes. Her intake is sitting at 88%. The nurse doesn't seem concerned but I am going to fix her nose piece just to make it worth the tape stuck onto her sweet sensitive skin.

Yesterday, Vada was taken off of all pain medications and boy did she have a hard time later in the evening. Poor baby cashew. Last night, when she was clearly in pain she was placed back onto one of the stronger pain medication that she had already been on. She was given it again at five this morning and then at noon. Since then she has only had Tylenol and she is doing very well. It was so sad though, watching her be in such an extreme amount of pain.

Vada was awake when Daddy and Grandma were here but getting ready to leave and that was around 8:30 PM. She just recently fell asleep. So if you use your imagination you'll be able to figure out where I am about to go. The talk around the nurses station and in room 429 was that Friday may have been Vada's release date. Truthfully, as much as I want to bring her home, I was not comfortable with leaving on Friday. With Vada's new road bumps, Friday is off the plate. Which I am okay with! She needs time to heal and recover and I felt like she was being rushed. She's just a baby. Anyway, were being told that Saturday may be where it's at, but I am going to place my bet on at least Monday. Still, that's only six days post-op and we were told seven to ten days, so shes still ahead of schedule.

Weightless

Yesterday was the first day that someone has ever commented on how small  Vada is.

Usually, it's been people saying things like; "She sure gets enough milk.", "She's not lacking in the food department."and "Are you sure she weighs (insert weight amount here____) and not more?"

Maybe I am a little sensitive. I have come to terms that I probably am, actually, I have come to terms with a great deal of things over these last two years.

I think its safe to say that a lot of my sensitivity then (during the seizures), came from fear and stress of the situation that we as a family were in. Maybe my silence towards what others were saying was my way of accepting that they just didn't understand and had no idea that what we were going through, was tough.
 
When Vada was born she weighed 6lbs-8oz. She was so tiny but by far a giant when compared to all of the other babies who were in the NICU.

Vada only minutes after being born.

Vada's low muscle tone, sweet cheeks and marble of a chin made her seem a little fuller than she really was. However, once she was in our arms, she felt weightless.

I'd like to believe that in general, most people are good and would not intentionally say things to be hurtful. People made their comments about Vada's weight not realizing that I was putting my 7 month old baby in 18 month baby clothes because her head was so swollen from the steroids that she had to take to stop seizures and not because of the abundance of milk she was drinking.

People didn't realize that their comments actually stung more at this point in her life than they did when she was born.  It was on a rare occasion that I would comment on other peoples remarks. There were so many that sometimes it just seemed like an endless battle.

I once read a post from another mother who had gone through the same battle with seizures, steroids and weight gain. She had commented on how there were times where she would throw shocking comments back to those who made rude remarks. Mainly out of pain and in her own words, she would say how these thoughtless people were making fun of a very sick baby. I too have lashed out in such a way on several occasions but it never made me feel better. I didn't like the look of guilt that I saw from the stranger that I had just hurt and I certainly didn't appreciate the pity that came afterward. Eventually, I just smiled because I knew that they didn't know and really what did it matter?

Vada's 1st Halloween ~ 11 Months old

Around 10 months old, Vada was just a couple of ounces off from being twenty pounds and she was only 25 inches long. Looking back at these pictures I don't remember seeing her this way. I knew she had gained, I knew she was swollen but I was with her all of the time. This was a gradual thing and truthfully, her weight was the least of my worries.

Today, the exterminator came. (If we don't spray we get Earwigs and Centipedes and I am scared shitless crapless of bugs that are inside of my house.)  Anyway, he was a new guy and had only been to our house on one other occasion. I was just laying Vada down on the living room floor to play as he was walking in through the front door. He took one look at her and said "Oh, you've got a new one." Justin had begun to walk him through the house and he replied to the exterminator with her actual age, almost fourteen months. The "bug man" stated how little she was and Justin agreed.

I was still in the living room as they were walking away, but I heard the short conversation and to hear someone finally say something other than her being "fat" warmed me up inside. I think babies should have good healthy rolls, but when it's all you hear about it begins to become offensive.

I don't know if this guy had children of his own, but lets face it men are not always the best judges when it comes to babies ages in comparison to their actual size. Vada is a pretty average size now, at least I think so. She is 17 pounds (give or take a few ounces) and she is right around 27 inches. She is wearing 12 month clothes and even some of those 18 month outfits/shirts that she was in months ago now fit her correctly.

The day before her 1st birthday.

She has her face back and doesn't look so uncomfortable anymore. She still has some baby rolls, which I think are fabulous and she still loves her milk, but now she is just more the size that she should have been. I am so grateful to be past that time. I pray everyday, sometimes several times a day, that we don't have to go through that again and I thank God for Vada's good health in the area of seizures.

Vada  on Easter of 2011

Ive learned a couple of things about the words we (the world in general) allow ourselves to say. In reference to babies I never refer to the baby as an 'he' or a 'she' if I am uncertain. I once had a elderly woman tell me that Jasmine, who at the time was in a pink dress, was a cute boy. I wont make the same mistake. Instead I ask the baby's name or I keep quiet until I know for sure. I never say a baby is cute if in my opinion he or she is not, because not all babies are cute and I don't say how something else on the baby is cute to deflect what I am really thinking. Mainly because I have had to endure quite a lot of that and you can tell that the person is searching for something to compliment on. Lastly, I never comment on a baby's weight. Too small or too big, you never know what the reasoning behind the situation and you never fully know what a person is going through.