tag:blogger.com,1999:blog-6319000400050843557.post9215894587905106101..comments2024-01-10T13:27:40.043-08:00Comments on Making the Most of Today: Seizures and Saint LouisTwilson9608http://www.blogger.com/profile/05245911547204280399noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6319000400050843557.post-46087706575440365012011-08-16T18:12:54.342-07:002011-08-16T18:12:54.342-07:00St. Louis was amazing to us when our local childre...St. Louis was amazing to us when our local children's hospital dismissed the seizures LC was having almost 2 years ago. Thankfully, LC's were transient and didn't require medication, but the neurological team at St. Louis was simply astounding and so quick and thorough in their assessment and treatment. I'm so glad you found your way there. Praying for all of you. xoxo...chchhttps://www.blogger.com/profile/15976406973273184524noreply@blogger.comtag:blogger.com,1999:blog-6319000400050843557.post-30747963266603677012011-08-16T17:56:28.518-07:002011-08-16T17:56:28.518-07:00Those videos wrenched my heart...we're praying...Those videos wrenched my heart...we're praying for you, sweet Vada.<br /><br />~BethBrian Stipphttps://www.blogger.com/profile/07430687524005663498noreply@blogger.comtag:blogger.com,1999:blog-6319000400050843557.post-78098776928545460302011-08-16T06:04:40.441-07:002011-08-16T06:04:40.441-07:00Annie- I look forward to seeing/meeting you, your ...Annie- I look forward to seeing/meeting you, your mom and Miss Ollie. In fact, I cant wait!<br /><br />April- Vada's seizures dont look like much but they pack a punch and can cause some serious brain damage if left untreated/un-diagnosed. Vada was diagnosed with West Syndrome/Infantile Spasms/Epilepsy when she was five and a half months old. If you look under the Blog header you will see a tab specifically for her seizures, although I haven't looked at it recently or even updated it, so I don't know what it has under it. She is now seventeen and a half months old and tomorrow Aug. 16, 2011 is the one year mark for her first noticed seizure.Twilson9608https://www.blogger.com/profile/05245911547204280399noreply@blogger.comtag:blogger.com,1999:blog-6319000400050843557.post-21278045197072359182011-08-15T20:36:43.088-07:002011-08-15T20:36:43.088-07:00Thank you so much for sharing such personal videos...Thank you so much for sharing such personal videos. Maybe they will help another parent to recognize something serious that they wouldn't have understood otherwise. I wouldn't have known those were seizures. It is so good that you went with your instincts and got her where she needed to be. Is this the first time she's had them? How old is she? My heart broke watching the videos, and I am praying all is taken care of soon. Please keep us updated.April Vernonhttps://www.blogger.com/profile/10165895845816043237noreply@blogger.comtag:blogger.com,1999:blog-6319000400050843557.post-4832649697717859882011-08-15T19:47:09.289-07:002011-08-15T19:47:09.289-07:00I'm glad you took her to St. Louis. You have ...I'm glad you took her to St. Louis. You have to follow your heart and they are wonderful there! I am coming tomorrow for an appt. @10. I will message you my cell. I'd love to see you both but I'll let you look me up if you are up to it. I definitely don't want to intrude! Lots of prayers for you!!Anniehttps://www.blogger.com/profile/10422211235427449216noreply@blogger.com